science

Severe fibromyalgia for more than 500,000 patients

(ANSA) – ROME, November 25 – In Italy, half of patients with fibromyalgia, a rheumatic disease characterized by widespread acute muscle skeletal pain, have acute or very severe pain from it. There are more than 500,000 men and women for whom the disease is particularly painful and disabling. For this category of patients, it is essential that the disease be immediately included in the basic levels of assistance (LIA). The call comes from the Italian Society of Rheumatology (SIRS) on the occasion of its 58th National Congress, which opened today in Rimini. For years, the Scientific Society has been engaged in dialogue with institutions, and a special registry for the disease has been activated two years ago. So far, data has been collected on 4,022 individuals recruited in 45 different specialized centers operating throughout the national territory. “We wanted to create an essential tool for patients, clinicians and institutions – says Roberto Girelli, President of Sir -. The registry is currently the first in the world in terms of the number of patients involved and allows scientific medical research to be conducted. We can improve knowledge of the history, the natural disease, define the time period between symptom onset and diagnosis We have held several meetings with the Ministry of Health and the Lia Office to determine, on the basis of the data collected, how best to organize social and health care in our country.” “Fibromyalgia is a central sensitization syndrome characterized by acute, widespread musculoskeletal pain – confirms Fausto Salavi, Associate Professor of Rheumatology at the Polytechnic University of March and national director of the Fibromyalgia Registry – and is characterized by a series of symptoms and clinical signs that in some way predisposes the patient to a poor quality of life. And the most Common and frequently are sleep disorders, headaches and digestive disorders. In total, it affects more than 1,200,000 men and women in Italy. With the aim of developing precision medicine, it is necessary to have accurate data on one of the most terrifying rheumatic diseases. “
Fibromyalgia can also be treated with telemedicine. In this regard, my predecessor notes, the iARPlus TeleMedicina Web platform has been activated which includes 44 rheumatology centers across the country. . (Dealing).

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