Chronicle / City of Bergamo
Tuesday 16 August 2022
On TV is the story of the world’s first patient to be successfully treated for Crigler-Najjar Syndrome.
The service launched by the Superquark editorial team in recent weeks at the Papa Giovanni XXIII Hospital in Bergamo starring Gaia, the world’s first patient to be successfully treated for Crigler-Najjar Syndrome, was broadcast in the special on Saturday, August 13.
For this extremely rare disease, liver transplantation is the only possible treatment. Affected people spend the night their whole lives under blue ultraviolet light.
Gaia’s life changes when she decides to undergo an international protocol of experimentation with gene therapy, promoted by Généthon in collaboration with the CureCN network and led by Lorenzo de AntigaAnd the Director of Pediatrics at Papa Giovanni XXIII Hospital.
Within the service, to illustrate the researchers’ work, caricatures created by the Bozzetto studio of the Amici della Pediatria association were also used to help understand how gene therapy works.
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