science

Deborah, 44, diagnosed with a rare disease and asks for an official trip to the US for treatment: “A Life Without Risk”

Affected by a a rare disease Ask for help from the web and the state. Deborah Iori, 44, lives in Sanjiano Prefecture Varese Suffering from congenital zinc deficiency from mitochondrial diseases, other metabolism and mineral transport defects, and myopia in mitochondrial encephalopathy, A rare, treatable disease Only in the Environmental Health Center Dallas.

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the disease

Deborah goes to the United States every year to receive treatment. In March of last year, in a complete epidemic, I was able to go to the hospital thanks to a special flight of the Air Force, and now by January, she must return to Dallas for treatment, and I applied to the military corps but has not yet received any response.

the demand

The risk for the 44-year-old is so high that if she skips treatments, she risks her life. “I wrote to Ats Insubria on November 27, I attached the medical documents to the Immunology Department of the Milan Infirmary, the reference center for this disease, where I identified the need for a trip, which is the only way to get to Dallas that could save my life. But no one ever answered me, ”the woman told Il Corriere della Sera,“ Then a second picture for information was sent to the top of the Lombard health system: I only received the generous assistance of the governor, but I don’t know what it is at this point, The office responsible for making arrangements for a case like mine. “

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The appeal

Deborah Aviation needs special conditions: its medicines must contain adequate refrigeration, and they need special oxygen treatment, so no commercial airline can guarantee them the same service. The Lady appealed to the Ministers of Foreign Affairs, Defense and Health through the Luca Coscioni Association, which offered her assistance. The request is to be able to have an official excursion that can allow you to travel safely, while also considering the pandemic, which could save your life.


Last update: Thursday January 14, 2021, 12:20

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